Find a Doctor
Doctors recommended by the parents who have a child with MECP2 Duplication Syndrome:
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UNITED STATES MARYLAND Dr. Sara Christina Sadreameli (goes by “Christy”) Pediatric Pulmonology Johns Hopkins Children’s Center 200 N. Wolfe Street Baltimore, MD 21287 Phone: 410-955-2035 GEORGIA Dr. Giouzel Glodener Pediatrician South Forsyth Family Medicine and Pediatrics 1845 Lockeway Drive, #404 Alpharetta, GA 30004 Phone: 770-343-9112 TEXAS Dr. Paul Nolan Pulmonologist Works out of Driscoll Children’s Hospital 3533 S. Alameda Street Corpus Christi, TX 78411 Phone: 361-694-4447 Dr. Scott Perry Neurology Dodson Specialty Clinic at Cook Children’s Hospital 1500 Cooper Street Fort Worth, TX 76104 Phone: 682-885-2500 Dr. Bankole Osuntokun GI (motility specialist) Dodson Specialty Clinic at Cook Children’s Hospital 1500 Cooper Street Fort Worth, TX 76104 Phone: 682-885-1990 Dr. Bernhard Suter Neurologist 6621 Fannin St. MC 1-1000 Houston, TX 77030 Phone: 832-822-1750 PENNSYLVANIA Dr. Eric Marsh Pediatric Neurology Children’s Hospital of Philadelphia 3501 Civic Center Boulevard Philadelphia, PA 19104 Phone: 215-590-1719 OREGON Dr. Sarojini Budden Neurodevelopmental Doctor 2801 N Gantenbein Avenue Suite 2225 Portland, OR 97227 Phone: 503- 413-4505 CALIFORNIA (Walnut Creek) Dr. Mary Jones Director, Katie's Clinic For Rett Syndrome and Related Disorders Developmental and Behavioral Pediatrics Children's Hospital and Research Center 2401 Shadelands Drive Walnut Creek, CA 94598 Contact: Erica Robertson, Clinic Coordinator Phone: 510-428-3885 ext. 5458 KENTUCKY Dr. Vinay Puri Pediatric Neurology UofL Health Care Outpatient Center 401 E Chestnut St Suite 510 Louisville, KY 40202 Phone: 502-588-4800 and Children's Hospital Foundation Building 601 S Floyd St Suite 500 Louisville, KY 40202 Phone: 502-588-3650 FLORIDA Dr. Donald E. George Pediatric Gastroenterology Nemours Children's Clinic 807 Children's Way Jacksonville, FL 32207 904-697-3756 TENNESSEE Sarika U. Peters, Ph.D. Assistant Professor Departments of Pediatrics and Psychiatry Vanderbilt University, Vanderbilt Kennedy Center for Research on Human Development Email: sarika.u.peters@vanderbilt.edu P: 615-322-9410 |
SPAIN Dr. Miguel Angel Hernandez Latorre Neurologist Children’s Hospital of Barcelona C / Consell de Cent 437 CP 08009, Barcelona Phone: 932310512 Dr. Eduardo Tizzano Ferrari Geneticist Hospital Vall Hebron Passeig Vall Hebron 119-129, Barcelona CP 08035 Phone: 934893000 SCOTLAND Ann Scott Paediatric Associate Specialist Armitstead Child Development Centre Dundee Scotland 0044 1382 835100 EXT 71320 SYDNEY, AUSTRALIA All of the doctors below are affiliated with Westmead Childrens Hospital Dr. Ken Peacock - Department Head Medical Paed. Hawkesbury Rd & Hainsworth St, Westmead, Sydney NSW, Australia +61 2 9845 0000 Dr. Sam Mehr - Specialist in Paediatric Allergy/Immunology Specialises in the care of children with food allergies, asthma, hayfever, eczema and immunodeficiencies Hawkesbury Rd & Hainsworth St, Westmead, Sydney NSW, Australia +61 2 9845 0000 and Suite 18, Level 3, Children's Medical Centre, Hainsworth St WESTMEAD NSW, 2145 SYDNEY Dr. Deepak Gill - Neurologist and head of Department Hawkesbury Rd & Hainsworth St, Westmead, Sydney NSW, Australia +61 2 9845 0000 |