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News Updates

MECP2 Duplication Syndrome Email Updates:

I email MECP2 Duplication Syndrome updates.....usually once a month.   If you want to stay updated on the latest news pertaining to this disease, please send your name and email address to Pam Albert at....

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May 2014 News:

Scot and Pam Albert recently had their "5 Annual Taste of Tuscany Dinner Auction."  A total of $22,125.00 was raised for MECP2 Duplication Syndrome research.

 

Beautiful Poem

                                         

 Heaven’s Very Special Child

  

A meeting was held quite far from earth,

“It’s time again for another birth”

Said the Angels to the Lord above.

“This special Child will need much love.

His progress may be very slow,

Accomplishments he may not show.

And he’ll require extra care

From the folks he meets down there.

He may not run or laugh or play:

His thoughts may seem quite far away.

In many ways he won’t adapt

And he’ll be known as handicapped.

So let’s be careful where he’s sent.

We want his life to be content.

Please Lord find the parents who

Will do a special job for You.

They will not realize right away

The leading role they’re asked to play.

But with this child sent from up above

Comes stronger faith and richer love.

And soon they’ll know the privilege given

In caring for their gift from Heaven.

Their precious charge so meek and mild

Is Heaven’s Very Special Child.”

 

 

 

Order Your MECP2 T-Shirts!

MECP2 T-Shirt

 

Update:  T-shirts can now be personalized with your child's name.

If you have any questions or would like to have an order form sent to you, email Pam Albert at This e-mail address is being protected from spambots. You need JavaScript enabled to view it

 

News Alert!

Pennsylvania MECP2 Duplication Syndrome Awareness Month Resolution.

Click here to read this resolution that was recently adopted by the Pennsylvania House of Representatives.

 

Hosting an Event?

Are you planning an event to raise awareness or support for MECP2 Duplication or Triplication Syndrome?  If so, please Contact Us and let us know so we can post your event details on the website!