Child's Name:    Darren

Birth Date:   June 30, 1993

Parent's Name:   Lynn

Siblings:  Emma, Craig, Oisin

Other Affected Family Members:    Brother Oisin (deceased)

Reside:    Ireland

Date Diagnosed:    2004

Milestones:

*Walked - 3 1/2  years old

*Said some words for a while

*Turned on tapes, learned to work the telly but only when no one was looking, opened doors, rattled door handles for attention, learned to turn on the lights, kicked and threw a football, turned the wheels on toys

*Feed himself with his hand, drank from feeding cups and from normal cups

Other Information:

*Got epilepsy - 11 years old

*Has lots of different types of seizures which are not controlled with medications.  Seizures are not as bad now as they were before.

*Due to the seizures he has stopped walking as he fell a lot

*Had a lot of aspiration pnemonia so is peg fed now and his health has improved.....he lost most of his abilities until the aspiration was diagnosed but now he is getting his life back.