News Updates

September 2012 News

100 Miles for the Bradenmobile

Randy Dietz is running 100 miles for Braden Albert.  If you wish to receive updates regarding Randy's progress, please click on the button below.

 

July 2012 News

Dutch MECP2 Duplication Syndrome Website Information

Op de Nederlandstalige website www.mecp2.nl vindt u informatie zoals symptomen, specialisten en nieuws over het MECP2 Duplicatie Syndroom. Deze relatief zeldzame aandoening komt in tegenstelling tot het Rett Syndroom voornamelijk voor bij jongens en wordt gekenmerkt door een ernstige tot zeer ernstige ontwikkelingsachterstand, hypotonie (lage spierspanning) en frequente (luchtweg-) infecties. Ook voor een complete lijst met relevante wetenschappelijke artikelen bezoekt u www.mecp2.nl.

MECP2 Duplication Syndrome Updates

I often send out MECP2 Duplication Syndrome updates.  Sometimes they are sent weekly and sometimes monthly. If you want to stay updated on the latest news pertaining to this disease, please send your name and email address to Pam at....

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June 2011 News

Thank you to Miss Devon Viola who raised $1,396.00 for Dr. Zoghbi's basic science research pertaining to MECP2 Duplication Syndrome.  For Devon's 13th birthday, she had a dance party and mailed invitations to over 100 friends.  In lieu of gifts, she asked everyone to donated money to MECP2 Duplication Syndrome research instead.

 

 

Thank you to Bryce Killian who raised $931.00 for Dr. Zoghbi's basic science research pertaining to MECP2 Duplication Syndrome.  Bryce, a wrestler for Middletown Area High School, conducted a "pin" fundraiser.